COVID-19 information for adults with 22q

Disclaimer: The following information pages are provided for educational purposes only. They are not intended to be taken as medical advice. If you have questions or concerns, please discuss them with your doctor or healthcare provider.

On this page
  • Symptoms
  • How to avoid catching COVID-19
  • What to do if you may have been exposed to the coronavirus
  • Who should be tested
  • Reliable resources for information on COVID-19 (including tip sheets)
  • What to do for appointments at our Clinic
  • Support and financial assistance
  • Things you can do at home


COVID-19 is a respiratory disease caused by a new coronavirus called SARS-CoV-2.

Definition of "Symptomatic" for COVID-19
  • fever - temperature of 37.8°C (100.04°F) or greater


  • any new/worsening:
    • cough
    • shortness of breath
    • sore throat
    • runny nose or sneezing (see note below)
    • nasal congestion (see note below)
    • hoarse voice
    • difficulty swallowing
    • new smell or taste disorder(s)
    • nausea/vomiting
    • diarrhea
    • abdominal pain


  • clinical or radiological evidence of pneumonia

Note: In patients presenting with ONLY runny nose/sneezing or congestion, consideration should be given to other underlying reasons for these symptoms such as seasonal allergies and post-nasal drip

Atypical Symptoms/Signs of COVID-19

Atypical presentations of COVID-19 should be considered, particularly in children, older persons, and people living with a developmental disability.

Atypical Symptoms
  • Unexplained fatigue/malaise
  • Delirium (acutely altered mental status and inattention)
  • Unexplained or increased number of falls
  • Acute functional decline
  • Exacerbation of chronic conditions
  • Chills
  • Headaches
  • Croup
  • Conjunctivitis
Atypical Signs
  • Unexplained tachycardia (very fast heart beats), including age specific tachycardia for children
  • Decrease in blood pressure
  • Unexplained hypoxia (low oxygen level), even if mild i.e. O2 saturation <90%
  • Lethargy, difficulty feeding in infants (if no other diagnosis)

[Return to top]

How to avoid COVID-19

Although this disease has been spreading quickly around the world, there are a few things you can do to avoid catching it.

  • Stay at home as much as possible
  • Avoid being very near another person
    • "Social distance" means keeping about 6 feet apart (2 metres, or 3 big steps)
  • Wash your hands with soap and water properly and frequently
    • If soap and water are not available, use an alcohol-based hand sanitizer. Rub the sanitizer all over your hands and let your hands dry in the air.
  • Wear masks as an added layer of protection
  • Avoid touching your eyes, nose, and mouth with your hands
  • Sneeze or cough into your sleeve or a tissue and wash your clothes often
  • Disinfect spaces regularly,especially phones, door handles, etc.
  • If you have returned from anywhere outside Canada, including the United States, you must self-isolate (i.e. stay at home and avoid close contact with others, including those in their home) for a total of 14 days.

See also

[Return to top]

What to do if you may have been exposed to the coronavirus

If you are concerned that you may have been exposed to, or are experiencing symptoms of COVID-19, please see:

Toronto’s COVID-19 Assessment Centres – Who should visit and who should not.

  • The COVID-19 Assessment Centres closest to our Clinic are located at Women's College Hospital and Mount Sinai Hospital.

Alternatively, please contact one of the following:

  • For those in Toronto - Toronto Public Health hotline
    • Information is available in multiple languages
    • Phone: 416-338-7600
  • Telehealth at 1-866-797-0000
  • You can try calling your primary care provider (such as family doctor) but note that many will be on reduced hours.
  • Your local public health unit

See also:

[Return to top]

Who should be tested for COVID-19?

[Return to top]

Reliable resources for information on COVID-19

COVID-19 Information for individuals with 22q
COVID-19 Information for individuals with immunodeficiencies
The Immune Deficiency Foundation generated a series of COVID-19 Videos.
  • To find out how individuals with immunodeficiencies have been doing when they contract COVID-19, please see the April 10 video (7 min 55 sec) and the May 8 video (9 min 11 sec)
Date of videoTopics
March 3, 2020COVID-19 update
Preventing infection
Logistical plans
What to do if you get sick
March 10, 2020Update and nomenclature
Life long immunity
Risks to patients with immunodeficiencies
Are immunoglobulins protective
How not to touch your face
March 18, 2020Updates on treatment
How does the immune system respond to a virus?
Specific concerns for different immunodeficiencies
Vaccine development
April 10, 2020Course of typical infection
How well people with immunodeficiencies do when they have COVID-19
May 8, 2020Treatment
Immune modulators
How well people with immunodeficiencies do when they have COVID-19
Vaccine development
Are immunoglobulins protective?
May 29, 2020PCR vs. Antibody testing
Immunoglobulin replacement
Going back to school or work
Multisystem inflammatory syndrome in children

COVID-19 Information for everyone

There are a lot of information on the Internet about the current pandemic, but not everything is accurate.

Please visit the following websites for the most up-to-date and reliable information:

[Return to top]

What to do for appointments at our Clinic

Please do not come to the Clinic if you have any of the symptoms listed above.

Please see our section on Clinic operations and hospital restrictions during COVID-19.

Please note that Toronto General Hospital has a Universal Masking Policy.

[Return to top]

Support and financial assistance

While there are support services and financial assistance available, we urge you to be very careful about possible scams. Please visit the Government of Canada's Slam the scam website to learn how to protect yourself.

Financial assistance
See also

[Return to top]

Things you can do at home

Watch videos on handling COVID-19 and self-isolation

  • Broadcast from Queen Elizabeth II
  • Advice from former astronaut Chris Hadfield on coping with self isolation
  • Message from the 22q11.2 Society

Be a tourist in your own home
Things to do with children

[Return to top]