Rare Disease Day 2025
Friday, 28th February 2025 8:30 am
A disease is said to be rare when it affects fewer than 1 in 2000 people. 22q11.2 deletion syndrome (22q11.2DS, or simply 22q) affects about 1 in 2148 people, so it is a rare disease.
Rare Disease Day 2025 will take place on February 28th. This annual event aims to raise awareness and generate change for the 300 million people worldwide living with a rare disease, their families, and their caregivers. Please check out rarediseaseday.org for more information.
As always, we encourage you to tell others about 22q. Feel free to use the information from our 22q11.2DS Quick Facts page. You can also show them our short animation video introducing 22q!