Please help healthcare providers and scientists to help you by taking this survey designed specifically for families affected by chromosome differences including 22q11.2 deletion and duplication syndromes:
https://redcap.chop.edu/surveys/?s=NK7DMDX3CM
G2MH, an international group of scientists and healthcare providers, many of whom are members of the 22q11.2 Society and supported by the US National Institutes of Health (NIH), is interested in learning about why families and persons affected by chromosome differences may or may not participate in research studies. In addition, given the current COVID-19 pandemic, G2MH is also hoping to learn about how families are coping during this difficult time.
Many thanks in advance for your help with this important work.