Explaining the diagnosis to someone who has 22q11.2DS

22q11NC (the North Carolina 22q11 Deletion Syndrome Support Group) has put together a book to explain what it is like to grow up with the syndrome. While it is geared towards younger people, it is a wonderful resource for explaining 22q11.2DS to an adult family member who has been diagnosed this syndrome.

The book is available online at http://www.22q11nc.org/book.

If you would like additional help in disclosing or explaining a diagnosis to a loved one, please call our clinic at (416) 340-5145 to arrange for an appointment.