About the clinic
Our clinic was formerly known as "The Dalglish Family Hearts and Minds Clinic". It is the first of its kind in the world, specializing in adults with 22q11.2 Deletion Syndrome ("22q11.2DS" or simply "22q").
The clinic provides individuals with 22q with care from healthcare experts from many specialties. It is devoted to helping adults with 22q and their families.
We aim to be a world leader in 22q, providing:
- Specialized, individual-centred care to adults with 22q and their families
- Excellence in education for patients, families, as well as trainees and health care providers
- World-class research to advance our understanding of all aspects of 22q and improve care and outcomes.
At the clinic we provide
The knowledge from many health professions provides the best possible care. We make our decisions based on the best and most up-to-date research available. Our patients receive seamless and coordinated care in one Clinic.
We will teach healthcare providers, students at all levels, the public, patients, and their loved ones about 22q and how to provide or obtain the best care possible.
We will bring the best treatments and most up-to-date research findings to our patients and their families.
We do cutting-edge research about 22q in our clinic and through related programs.
Our aim is to make appointments as convenient as possible for individuals with 22q, their families and caregivers by coordinating care with various specialities in one visit. The specialists include, but are not limited to:
- Genetics expert in 22q
- Social Worker
- Registered Dietitian
Cardiologists from the Toronto Congenital Cardiac Centre for Adults (TCCCA) are an important part of the Dalglish Clinic team.
The health care providers involved in the individuals' care will:
- Provide timely and effective care for 22q
- Provide regular and careful monitoring of their specific health conditions
- Give individuals who have 22q and their caregivers information and specialized support
- Connect them with local resources and peer support as needed
- Coordinate care and help with advocating
Please see our section on Referrals.
For a printable (pdf) file of the above image, please click on the image itself.
Your first appointment will take about 4 to 6 hours. You will have the chance to meet with our social worker, dietitian and doctor, who all specialize in 22q. Our Patient Flow Coordinator will call you ahead of time to explain this process. We try to make the visit as simple and convenient for you and your family as possible.
Your follow-up visit will be shorter than your first visit, but this will depend on the type of appointment you have and which specialist(s) you are seeing. Plan for this visit to take about 1 to 2 hours.
Our team is dedicated to providing the most comprehensive and seamless care to patients, families and caregivers. We will do our best to plan your care with different specialties all in one visit (for example: psychiatry, cardiology, and endocrinology).
The initial appointment must take place within the Dalglish Clinic. For individuals who find it very difficult to travel to the clinic due to distance or mobility issues: the Director of the clinic may offers to see the individual via Telehealth's teleconferencing service for the second or subsequent appointments. Individuals can inquire about the possibility of receiving this service at their first appointment at the Dalglish Clinic.